MND’s a bastard,
it bring us sufferers to our knees
Many cannot speak
or eat, breathe unaided or sneeze
A common
denominator is that mostly we can’t walk
When out,
requiring wheelchairs, at which some of us will balk
MNDers start out
with an optimistic outlook
Bringing any odd dissenters,
very quickly, to book
Unfortunately, MND
takes no prisoners, is relentless
It marches on
regardless, and sometimes I must confess
Where,I once was belligerent,
‘MND won’t beat me’, I said
As time goes
on, MND plays severely with my head
There are days
when I am fed up and depressed and feeling sad
I want people to
support me, to stop me feeling bad
I don’t want to be
chastised for not being ‘Optimistic’
When sceptical of
breakthroughs; a cure won’t be that quick
So, for those of
us, when down and bitter and resentful
Be empathetic and
supportive, persuade us our cup’s half full
And not half empty
as so many of us fear
When we see how
many of us are dying every year
Yes, we can
make the most of the time that we’re around
Try to raise funds
or awareness as with talents we abound
We’ll have days
when we’re upbeat and won’t let the b****r get us
But we’ll also
have the days when we’re down and think, ’Why us’?
Please don’t be
annoyed when someone’s sad and cannot cope
Just be patient,
offer help and positive cajoling, yes, and................ hope
My dad died from Motor Neurone Disease in 2002 when I was only three. I have no memories of him. But this post, and the others, really... touch me. Keep fighting, and all my love, Jake.
ReplyDeleteThank you Jake. I am so sorry that you didn't get to know your dad. I bet he was a great guy. Maybe one day there will be a treatment/cure. Love, Pauline
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