Sunday, 15 April 2012


It didn’t just arrive, it crept up on me
Just like that dreaded thing, ‘obesity’
But, unlike some things that one can prevent
MND   is there inside us and from hell is sent
A quirk of gene from when inside the womb
Means an early descent into a world of doom
But, before the unwelcome and untimely  demise
MND steals your life in a way you can’t surmise
Tripping or dropping are some signs that you see
Or drunken-like speech to cause much hilarity
But these strange symptoms are no laughing matter
Your hopes and dreams of old age are quickly shattered
In one fell swoop when you hear those words
It’s Motor Neurone disease. You say, ”Don’t be absurd.
Surely, something else is causing me to fall”?
But when searching the net you hit a brick wall
However much you try to avoid the diagnosis
It’s there, in front of you, with a poor prognosis
At first you are upbeat with a heart full of hope
It’s the only way that you can begin to cope
But, as things progress and your body fails
It’s hard to keep positive and let optimism prevail
Your intended sense of purpose is gradually eroded
You realise that your hopeful future has exploded
Becoming a brain in a body, just a helpless blob
No longer capable of holding down a job
Some of us try hard to make others aware
That MND sufferers have a great deal to bear
Our plight is nowhere near sufficiently known
Though our numbers are many, awareness hasn’t grown  
We are suffering a horrible death and we fear
With a cure far from imminent it will take many years
In the meantime, our needs are not well understood
We don’t get the requirements that we know we should
Individual needs are not well provided for
Though we do get some help we need a great deal more
We’re asking all those healthcare personnel
Who deal with MND, please be sure to treat us well
We can’t wait for months on end for a shower chair
Or to have a 90 page assessment for ‘Continuing Care’
Our life is far too short to wait for ‘help’ for so long
Whilst still trying to remain mentally strong
Please try to understand the problems we’ve got
Help us when we’re here and when we’re gone –


  1. I lost my Dad to MND in 2009, he had the fast progressing form. I think you have summarised the effects of this awful disease perfectly.

    I hope and pray that a cure is found soon x

  2. Just found out about this blog and have read some of the posts which are very touching. My mother died in 1986 and my father-in-law in 1989 both with MND. Our prayers are with you and so many others that are suffering with MND. And so many keep so cheerful through it despite the difficulties. I count it a priviledge to be involved with fundraising with bike rides. I have a blog for one that is planned in September. Your blog will encourage me to work harder on the fundraising.