MY DISEASE....

I have a disease, it’s an annoying thing

It doesn’t hurt, or ache or sting

It just makes me weak, my mobility’s crap

So I sit in my wheelchair, cat often on my lap

I'm lucky, can still speak, I’ll give you that

I can talk on the phone, have a chat

But that’s about all I can do

I even struggle going to the loo

This disease catches you unawares

Before too long you can’t climb the stairs

I can use my computer, still, that’s a bonus

But, getting dressed is an added onus

My carers,now,dry and dress me

I can, read Kindle books, watch TV

Eating’s very hard and exceedingly messy

I get covered in food, clothes can’t be dressy

My neck is weak, head inclined to flop

Headrest and collar support so my head won’t drop

But, being the loud, gobby lass, that I am

I make myself heard, don’t give a damn

Tell the authorities what I think

Make a noise, create a stink

Who else will help us to be heard

Getting help? Don’t you be so absurd!

MNDers, we’re the forgotten few

We all die off, disappear from view

It’s easier to ignore our plight

But we won’t give up without a fight

If you see this , remember in the main

It’s our bodies that die, not our brain

Don’t speak to the carer if one has no voice

They can hear but not respond, they have no choice

I’m doing my best to speak for those others

Who can’t speak for themselves as no-one else bothers

If you can help in any way

Contact the MNDA

We haven’t got a cure as yet

But there’ll be one someday, on that you can bet

It will be too late for most of us

But let’s not be selfish, make a fuss

Even if you could just try to understand

What MND does to woman and man

That would be a brilliant beginning

To appreciate a disease that has no ending...

Just death!