I
sit here each day, my mind wandering
Where
do I go from here, pray?
Am
I destined to fritter away what is left
Of
my life, sitting here every day?
My
legs, they hardly function
My
arms, they are rubbish too
My
neck gets so tired I find it hard to explain
The
feelings of frustration to you
I
daydream about what things might have been
It
is silly, I know, and depressing
But,
mainly, I ask myself why do I bother?
As
carers do my washing and dressing
My
retirement was to be idyllic
Three
months of the year in the sun
The
rest of the year I would fritter away
Enjoying
each day one by one
Fate
has dealt a blow that is bitter
MND
is surely no fun
It
robs one of life bit by little bit
Not
to be wished on anyone
I
try hard to remain somewhat positive
Think
about what I can still do
Unfortunately,
the list is not very long
But
I still have a voice, that is true
I
can carry on writing my poetry
Or
whinge, as I do in my blog
I
could write the odd article about MND
And
how everyday is a slog
I
can still shout about how bad life is
Being
stuck in a flippin’ wheelchair
Doing
nothing else but computing
When
I’d much prefer to be elsewhere
But,
there’s light at the end of the tunnel
A
new culprit has reared up it’s head
Though
I don’t know if the research will find
A
real treatment before I am dead
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