Friday, 20 May 2011


Last night I had an epiphany; I know the rot is setting in
I think that I am losing the fight, the one I'll never win
There I was, just stranded, lying prostrate in my bed
Unable  to release my ear bent uncomfortably under my head
My knee was sore, my hip it hurt, couldn't move to clear the pain
I couldn't sleep, don't want to have a night like that again
But the bear facts are that this is the slippery slope's begining
Unfortunately, with MND there can be only one ending.......

..........One day later, better news, my knee is not so sore
My ear is feeling better, not caught up behind, 'no more'!
Though my arms are weary and my strength is getting bad
I feel,today, somewhat cheerier and not so very sad
My searches on the internet for things to ease the strain
Have resulted in somewhat succesful purchases, again
I've found a little device that attaches to my phone
To make a landline 'bluetooth' ,now, I can phone and moan....
To my heart's content without my neck getting tired
Or me shouting down the speaker phone sounding like I'm 'wired'!
It's little things like this that stop me going 'barking'
People just don't understand, for explanations they keep asking
It's difficult to explain how awful it can be
Living with the progression of that disease called MND

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