I’m crying now,
most everyday
This MND won’t go
away
It crept along at
a slow pace
But now affects me
from toes to face
The latest aspect
to appear
Is loss of arm
strength, and I fear
With it goes my
independence
Inability to feed
myself makes me tense
Increasing need to
rely on others
Makes me feel like
a child and its mother
My husband now has
to spoon feed me
But with his bad eyesight he cannot see
He’s constantly
feeding my chin, nose or cheek
I spend much of
each mealtime trying hard not to shriek
‘Higher, right’,
or words like this
God, when I fed my
children it was ‘a piece of p**s’!
My OCD doesn’t
help the situation
It only adds to my
severe frustration
Can’t blow my nose
or scratch an itch
I can assure you
that MND is a ‘bitch’!!