Friday, 25 March 2011

We've, finally, got our car back, hooray!
I am going out in it, today
To order 'The wedding dress'
Though I must confess
I'll be crossing my fingers, all the way..............

Those naughty people who adapted my car
Did the absolute worst job, by far
The compressor, it broke
It was no joke
Workmanship was crap on my 'jam-jar'

We'll be bringing them to book, don't you fret
They've not heard the last of me yet
A very stern note
Is what I wrote
To ask for my money back, you bet!

So, watch this space and you'll see
What eventually will happen to me
I will not give in
Till they admit their sin
And pay up the outstanding fee

Wednesday, 23 March 2011

BLOG??

'Blog' rhymes with a soft furry animal, dog
It, also, rhymes with a kiss, as in 'snog'
With hoppity-ribbidy creatures called frogs
And, also with sooty, freezing fog-like 'smog'
But, what is the real meaning of 'blog'?
Is it writing about the daily slog?
Or something banal like a trip to the bog
Who was it first coined the word, 'blog'?
No idea; but I know it means, 'weB log' !!
So there.

Tuesday, 22 March 2011

JUST MY LUCK!

How unlucky can you be?
My diagnosis was MND!
Still, I could be dead
From a blow to the head
So, should I be thinking,"Lucky me"?

Monday, 21 March 2011

MY 'JOLLY NAUGHTY CAR' (**!!*!*)

My car, it has broken......AGAIN!!
It may get fixed, don't know when
The Computacab man
Says he'll come when he can
But what will I do untill then????

Saturday, 19 March 2011

FEELING BETTER...................

On a more positive note, a wedding IS being planned
The reception is booked, honeymoon on the sand
And in the sun, on an island, far away from it all
I'm sure that both bride and groom will have a ball!
I'm writing a poem to read on the day
Not allowed quite 'a speech', but then, hey
It's the father who makes rather a fool of himself
Wittering on about his daughter, no longer 'on the shelf'
Whilst we all sit around, in an embarrassed way
Thinking, "Thank goodness that this isn't 'my day'!
The reception is organised, venue, food and the band
I  offer advice, non physical help, a pastoral hand
Luckily, my daughters still take after their mum
Everything that needs to be done, it gets done
Only nine months to go now, bet my daughter can't wait
Though, come December, she may be in a bit of a state!
It will all work out in the end, of that I am sure
Sweetheart, keep cool, don't sweat, I implore
For me? Something to think about besides MND
A wedding for Christmas; how great that will be!

Tuesday, 15 March 2011

THE BLOODY, DAILY SLOG

I know I should be happy for a wedding's being planned
I really should be thankful that I'm still able to stand
I can speak and breathe and swallow, can listen and respond
I really shouldn't get upset or be a person in despond
But, somehow, things affect me, I feel somewhat depressed
My feelings of inner happiness are just a tad suppressed
I'm trying hard to perk up, to prevent friends and family
From seeing what I feel like, seeing the 'inner me'
I have tried looking forward to events yet to take place
But, however much I try it depression gathers pace
Going out is such a trial,  so many things to prepare
And I know that I will just endure a  trip in the fresh air
People try to tell me I have things to look forward to
But I bet they would not agree if they felt the way I do
My MND progression is so very hard to bear
That I prefer to be reclusive than to venture 'out there'
Where people are all bustling, living active and full lives
Whilst all us MNDers are trying hard just to survive
I struggle to be positive, to show an inner strength
To hide my negativity I go to the greatest lengths
I write witty poetry and construct helpful blogs
But to be frank this MND lark is such an awful slog
I'd love to stay all cozy in my lovely double bed
But I have to get up,get dressed  and try to face life instead
Is it just for the benfit of others we persist?
Or should I try to make my mark as a reason to exist?
Should I shout out from the rooftops, "Come on, find a cure"!
This is what we sufferers crave, of that you can be sure
Even if a new treatment were only found to halt disease
I know that  MNDers, who could, would fall down on their knees
To worship those discoverers of a life changing drug
That would help us MNDers survive, 'The Bloody, Daily Slog'!

Monday, 7 March 2011

MY NEW WHEELCHAIR

I have a new wheelchair, a go-faster job
It’s a mid wheel drive, bet it cost a few bob
It has a riser which takes it up in the air
And a tilt in space so I can sleep in the chair
The arm-rests are gel, so I’ve comfort, ah bliss
It’s the nicest of chariots, no, don’t take the piss
Little things, they can please us raspberry ripples
We can no longer have fun or get drunk on a tipple
We’ll rave over the tiniest thing we can do
Like who can still eat, talk or go alone for a pooh
So my wheelchair is the best thing to happen today
Well done, the NHS for a change, I shout, ‘hooray’!